Hello! I hope you are all having a good day and feeling as well as you can feel right now! I am just writing a short post (NOT because of psycho psychologist ... at least she will remain unnamed!!) to let you all know that I have a few really exciting things happening and coming … Continue reading Exciting things ahead!
If you are one of the lucky "healthy, normal" people out there reading this, I have a favor to ask of you. I guess this would work only if you are over the age of 30 as well, so my apologies to any younger readers - I am quite sure I have plenty of questions … Continue reading A Thought “Experiment” for the “Healthy”
In my last long post (earlier today!) the basic "idea" I'm driving at and driving MYSELF toward is to try to be "a voice" within the "Chronic Illness Community" that is less showcase-y and less sad. There is already so much sadness and so many bad things we deal with on a daily basis - … Continue reading Succinct-ify THAT Sunday!
I literally just woke up about 15 minutes ago (I have not been feeling well at all) but I wanted to write this one ASAP since I know there is often a lot of confusion about what the term "spoonie" means, where it comes from, and why it is used. *Of course I had to … Continue reading Super Succinct Sunday – Spoonies
I really want to get this "blog" really up and running - there is so much "misinformation" and so little "awareness" about Behcet's, ESPECIALLY moderate-to-severe Behcet's (i.e., "systemic involvement") and it is incredibly important to me for this "blog" to be a source of "reliable" information as well as a place where people with Behcet's … Continue reading TALK ABOUT IT TUESDAY! A “Short” Version of My “Behcet’s Story”
I want to make this as brief as I can in order to "train" myself to write shorter posts. For those of us who deal with chronic illness, it is absolutely CRUCIAL that we learn to "manage our expectations." Basically, this means giving up being a blind optimist and giving up being a pessimist based … Continue reading Managing Expectations
Behcet's is at once an "illness" that is easy to describe and yet incredibly difficult to explain. It is very much like an autoimmune disease but it is NOT a "true" autoimmune disease: it is a type of auto-inflammatory vasculitis. I have recently run into a barrage of "fire," as it were, for questioning someone … Continue reading Friday Facts – What is Behcet’s? (Part One)
So wait ... am I correct in my "information" that Lady Gaga's "infamous" "aunt" Joanne died from Lupus? If this is TRUE, then HELLO! I should not need to scream too loudly to get the attention I am seeking! All of these diseases are VERY close - as far as Behcet's goes (this is a … Continue reading Hold That …
Throughout all of these posts and all of my "posts" on "Social Media" (and the posts of others with chronic illnesses for that matter!) I have realized there is a certain "dilemma" that faces everyone who "suffers" from a chronic illness (or chronic illnesses) - namely, that the term "chronic illness" doesn't really carry with … Continue reading THE PROBLEM Defining “Chronic Illness”
Today I would like to "vent" about something that has been a continual source of frustration for me for the past few years, namely, the combination of "minor" complaints from people who suffer from moderate-to-severe chronic illness (and are in the state preceding remission) and those that come from people who have such minor illness … Continue reading Friday Frustrations – Facing Symptoms During the Beginning of Remission / Minor “Cases”