I really want to get this "blog" really up and running - there is so much "misinformation" and so little "awareness" about Behcet's, ESPECIALLY moderate-to-severe Behcet's (i.e., "systemic involvement") and it is incredibly important to me for this "blog" to be a source of "reliable" information as well as a place where people with Behcet's … Continue reading TALK ABOUT IT TUESDAY! A “Short” Version of My “Behcet’s Story”
I want to make this as brief as I can in order to "train" myself to write shorter posts. For those of us who deal with chronic illness, it is absolutely CRUCIAL that we learn to "manage our expectations." Basically, this means giving up being a blind optimist and giving up being a pessimist based … Continue reading Managing Expectations
I just realized another interesting "quirk" of human psychology - the fear of what "we" will do if and when "we" start to feel better and have seemingly copious amounts of time that we suddenly have to fill. I don't know if this is something that happens specifically to those of us who have dealt … Continue reading Friday FEAR
Today I would like to "vent" about something that has been a continual source of frustration for me for the past few years, namely, the combination of "minor" complaints from people who suffer from moderate-to-severe chronic illness (and are in the state preceding remission) and those that come from people who have such minor illness … Continue reading Friday Frustrations – Facing Symptoms During the Beginning of Remission / Minor “Cases”
Disabled. Apparently the word carries connotations that those of us who are disabled don't always associate with characteristics that describe ourselves. I was presented with this idea on a recent phone call with my mother who had accompanied me earlier to a dentist appointment - it was a second opinion appointment and I wanted someone … Continue reading Disabled, not Unable!