Hold That …

So wait ... am I correct in my "information" that Lady Gaga's "infamous" "aunt" Joanne died from Lupus? If this is TRUE, then HELLO! I should not need to scream too loudly to get the attention I am seeking! All of these diseases are VERY close - as far as Behcet's goes (this is a … Continue reading Hold That …

Friday Frustrations – Facing Symptoms During the Beginning of Remission / Minor “Cases”

Today I would like to "vent" about something that has been a continual source of frustration for me for the past few years, namely, the combination of "minor" complaints from people who suffer from moderate-to-severe chronic illness (and are in the state preceding remission) and those that come from people who have such minor illness … Continue reading Friday Frustrations – Facing Symptoms During the Beginning of Remission / Minor “Cases”

What’s the Point?

I have had a very difficult week (for many reasons - I don't really want to discuss any of them here or now, but I'm sure I will come up with posts with topics that "spin off" the issues with which I have been dealing), so I thought I would write very briefly about why … Continue reading What’s the Point?

Disabled, not Unable!

Disabled. Apparently the word carries connotations that those of us who are disabled don't always associate with characteristics that describe ourselves. I was presented with this idea on a recent phone call with my mother who had accompanied me earlier to a dentist appointment - it was a second opinion appointment and I wanted someone … Continue reading Disabled, not Unable!

How to Convey Chronic Illness?

I will inevitably be coming back to this topic because there is just so much to be said about it. However, before I run out the door to yet ANOTHER doctor appointment, I wanted to address this issue - how do we, as people who have dealt with chronic illness(es) for a long time convey … Continue reading How to Convey Chronic Illness?