If you are one of the lucky "healthy, normal" people out there reading this, I have a favor to ask of you. I guess this would work only if you are over the age of 30 as well, so my apologies to any younger readers - I am quite sure I have plenty of questions … Continue reading A Thought “Experiment” for the “Healthy”
In my last long post (earlier today!) the basic "idea" I'm driving at and driving MYSELF toward is to try to be "a voice" within the "Chronic Illness Community" that is less showcase-y and less sad. There is already so much sadness and so many bad things we deal with on a daily basis - … Continue reading Succinct-ify THAT Sunday!
I have so much to write and I have such a tendency to ramble on and go off on tangents so I am really going to make a concerted effort to discuss ONE topic (perhaps two if they "go together," as the topics "money" and "panic attacks" often do!) at a time here. There is … Continue reading Money Money Money … and Panic … ATTACKS!
I have been sort of watching (in my "watching way" of leaving shows on while I am doing other things) this Netflix Anime called ピアノの森. It's a little goofy (the attempts at getting the "animation" of piano playing is VERY computerized, if that is a "proper" description), but there was just an interesting line that … Continue reading Wednesday Wisdom – “Righting Your Heart”
I want to make this as brief as I can in order to "train" myself to write shorter posts. For those of us who deal with chronic illness, it is absolutely CRUCIAL that we learn to "manage our expectations." Basically, this means giving up being a blind optimist and giving up being a pessimist based … Continue reading Managing Expectations
Money is a difficult subject for just about everyone. Talking about "financial success" and spending or even just having money, however, can be a topic that brings absolute panic to someone with chronic illness - it certainly does for me. Aside from chronic illness itself - that is, thinking about how I feel in the … Continue reading Wednesday Wisdom – Spending Money
I just realized another interesting "quirk" of human psychology - the fear of what "we" will do if and when "we" start to feel better and have seemingly copious amounts of time that we suddenly have to fill. I don't know if this is something that happens specifically to those of us who have dealt … Continue reading Friday FEAR
So wait ... am I correct in my "information" that Lady Gaga's "infamous" "aunt" Joanne died from Lupus? If this is TRUE, then HELLO! I should not need to scream too loudly to get the attention I am seeking! All of these diseases are VERY close - as far as Behcet's goes (this is a … Continue reading Hold That …
Hello my lovey doves! I apologize for not getting back here last night to write about "contentment" - as I mentioned on Sunday, I have been quite ill and very weak and it has kind of come and gone at its own "discretion" with no regard to my feelings about it, of course! At any … Continue reading Screaming for …?
I have been struggling for the last decade not only with the physical symptoms and other manifestations of chronic illness but with the innumerable issues that come with NOT being "functional" and all of the emotions that come with it. Today I have been trying to sort things out in my head a little bit … Continue reading Overwhelmed.