Today I have dealt with "bipolar" emotions - although I had my sort of "normal" daily things to do, the total of these things wasn't great, and I felt, as I have been feeling more and more over the last few months, that I have been slipping into something like a very deep depression. HOWEVER, … Continue reading A Sense of Purpose
Tag: behcet
A Thought “Experiment” for the “Healthy”
If you are one of the lucky "healthy, normal" people out there reading this, I have a favor to ask of you. I guess this would work only if you are over the age of 30 as well, so my apologies to any younger readers - I am quite sure I have plenty of questions … Continue reading A Thought “Experiment” for the “Healthy”
Succinct-ify THAT Sunday!
In my last long post (earlier today!) the basic "idea" I'm driving at and driving MYSELF toward is to try to be "a voice" within the "Chronic Illness Community" that is less showcase-y and less sad. There is already so much sadness and so many bad things we deal with on a daily basis - … Continue reading Succinct-ify THAT Sunday!
TALK ABOUT IT TUESDAY! A “Short” Version of My “Behcet’s Story”
I really want to get this "blog" really up and running - there is so much "misinformation" and so little "awareness" about Behcet's, ESPECIALLY moderate-to-severe Behcet's (i.e., "systemic involvement") and it is incredibly important to me for this "blog" to be a source of "reliable" information as well as a place where people with Behcet's … Continue reading TALK ABOUT IT TUESDAY! A “Short” Version of My “Behcet’s Story”
Managing Expectations
I want to make this as brief as I can in order to "train" myself to write shorter posts. For those of us who deal with chronic illness, it is absolutely CRUCIAL that we learn to "manage our expectations." Basically, this means giving up being a blind optimist and giving up being a pessimist based … Continue reading Managing Expectations
Friday Facts – What is Behcet’s? (Part One)
Behcet's is at once an "illness" that is easy to describe and yet incredibly difficult to explain. It is very much like an autoimmune disease but it is NOT a "true" autoimmune disease: it is a type of auto-inflammatory vasculitis. I have recently run into a barrage of "fire," as it were, for questioning someone … Continue reading Friday Facts – What is Behcet’s? (Part One)
“If I Were Healthy …”
There is this little game I like to play with myself when I'm feeling down in the dumps or depressed or just very ill - for functional purposes, I will call it "If I Were Healthy." The idea is that I think back to the days before I was so sick (or, perhaps, the "pauses" … Continue reading “If I Were Healthy …”
THE PROBLEM Defining “Chronic Illness”
Throughout all of these posts and all of my "posts" on "Social Media" (and the posts of others with chronic illnesses for that matter!) I have realized there is a certain "dilemma" that faces everyone who "suffers" from a chronic illness (or chronic illnesses) - namely, that the term "chronic illness" doesn't really carry with … Continue reading THE PROBLEM Defining “Chronic Illness”
A Seriously Manic Monday!
Hello my lovey doves! I am just popping in quickly to let yinz know I HAVE NOT DISAPPEARED FROM THE FACE OF THE EARTH! i have NOT DISAPPEARED LIKE I DID ON YOUTUBE! I am here - I am just one crazy busy chickie - this weekend was ... interesting (I proved something to myself, … Continue reading A Seriously Manic Monday!
Wednesday Wisdom! “I’ll Sleep When I’m Dead!”
This one WILL be short and sweet! I had planned out a continuation of "Tautology Tuesday" from yesterday but Imma save that one for later in the week! For now, I just want to talk about something I'm sure you've either heard or said yourself:"I'll sleep when I'm dead!"Now, the general insinuations here are: 1. … Continue reading Wednesday Wisdom! “I’ll Sleep When I’m Dead!”
Living with Chronic Illness - Thoughts on Life and Life Advice from a Spoonie's Perspective 