Super Succinct Sunday – Spoonies

I literally just woke up about 15 minutes ago (I have not been feeling well at all) but I wanted to write this one ASAP since I know there is often a lot of confusion about what the term "spoonie" means, where it comes from, and why it is used. *Of course I had to … Continue reading Super Succinct Sunday – Spoonies

TALK ABOUT IT TUESDAY! A “Short” Version of My “Behcet’s Story”

I really want to get this "blog" really up and running - there is so much "misinformation" and so little "awareness" about Behcet's, ESPECIALLY moderate-to-severe Behcet's (i.e., "systemic involvement") and it is incredibly important to me for this "blog" to be a source of "reliable" information as well as a place where people with Behcet's … Continue reading TALK ABOUT IT TUESDAY! A “Short” Version of My “Behcet’s Story”

Friday Facts – What is Behcet’s? (Part One)

Behcet's is at once an "illness" that is easy to describe and yet incredibly difficult to explain. It is very much like an autoimmune disease but it is NOT a "true" autoimmune disease: it is a type of auto-inflammatory vasculitis. I have recently run into a barrage of "fire," as it were, for questioning someone … Continue reading Friday Facts – What is Behcet’s? (Part One)

Wednesday Wisdom – Spending Money

Money is a difficult subject for just about everyone. Talking about "financial success" and spending or even just having money, however, can be a topic that brings absolute panic to someone with chronic illness - it certainly does for me. Aside from chronic illness itself - that is, thinking about how I feel in the … Continue reading Wednesday Wisdom – Spending Money

Sunday Thought …

I realize there is not alliteration going on with this post, but I have been thinking about something I have advised others NOT to do and yet I have found myself doing - that is, "snooping" on Facebook (not really "snooping" as much as just LOOKING) and inadvertently comparing myself and my life with others … Continue reading Sunday Thought …

Friday FEAR

I just realized another interesting "quirk" of human psychology - the fear of what "we" will do if and when "we" start to feel better and have seemingly copious amounts of time that we suddenly have to fill. I don't know if this is something that happens specifically to those of us who have dealt … Continue reading Friday FEAR

Hold That …

So wait ... am I correct in my "information" that Lady Gaga's "infamous" "aunt" Joanne died from Lupus? If this is TRUE, then HELLO! I should not need to scream too loudly to get the attention I am seeking! All of these diseases are VERY close - as far as Behcet's goes (this is a … Continue reading Hold That …