I really am going to try my best to make this a short post - I really just wanted to get this idea down before it flew off into the vault of Beth. I think those of us who have severe chronic illness have a very strange relationship with death - I think that relationship … Continue reading Life and Death
Author: Beth Poste
I have been living with chronic illness since I was 2 months old. My first "formal" chronic illness diagnosis was Behçet's Disease - I was 17 at the time. I was later diagnosed with Common Variable Immune Deficiency (I more or less led the doctors to that diagnosis - that story is for another time!) and those have been my "primary" two illnesses. I have many other "secondary" diagnoses such as seronegative Rheumatoid Arthritis, Chiari 1 Malformation (a result, I believe, of the Behçet's causing aseptic meningitis time and again since it had never appeared in brain scans before I was about 24-25), osteoporosis, compression fractures of the thoracic spine, and many others. I know what it is like to feel as if you have lost years of your life that you can never recover from illness and the many restrictions it places upon you in your everyday life. I just want you to know that I know what it is like and I have been there through every period of my life - you are NOT ALONE! Please do not hesitate to contact me if you ever need someone to talk with or someone just to listen to you - I am always here! Thank you for taking the time to read this and my other posts and I hope you are having a happy and healthy day no matter where you are in the world! Take care.
How Many Years …
I am sure I will write at least another post with this title. Maybe a book. But for now, all I will say is HOW MANY YEARS WILL IT TAKE TO FORGET YOU??I don't know. I'm not there yet. I wonder if I will ever be. *And all the obvious "you"s that could mean are … Continue reading How Many Years …
We Are VERY Fragile.
I really cannot say much about this topic right now because I am in the middle of trying to deal with this very thing but I wanted to bring it up because it is incredibly important. I think we find that the floor of the base need for "security" falls out from under us again … Continue reading We Are VERY Fragile.
An Interesting Paradox
I was just watching a "Spendaholics" video in which a 21-year-old college student's "overspending" is vastly increased by her frequent trips to and from London to visit her boyfriend there. I won't delve too deeply into my own college experiences (for the large part, I look back on that part of my life with a … Continue reading An Interesting Paradox
All The Small Things …
I am not in my "writer mode" at the moment, but I thought this was an important thing to get down. As I mentioned in my last post, I have realized this year how incredibly "screwed up" I am beneath the surface. Spending so many years not even being able to count on your body … Continue reading All The Small Things …
THIS IS A SHORT POST!
How is it that people manage to write one-line comments regarding very complex social issues and injustices? Actually, regarding just about anything, how do people manage just to write one line? I have an extensive vocabulary and I try to make sure I am learning new words in English as well as in other languages; … Continue reading THIS IS A SHORT POST!
Finding the Path
Over the last couple of months - and over the last month in particular - I have started to REALLY realize how damaging the effects of "losing" a decade (actually, closer to 15 years) of my life have been to all of me. The physical effects are somewhat clear; I do not know how the … Continue reading Finding the Path
Hello, My LOVES!
Hello! I hope everyone who was with me at the beginning of the year is still here today. I am just dropping in to write this short post to let you all know I am alive and physically fairly well (at least as far as I know ... I did have to go to Urgent … Continue reading Hello, My LOVES!
A Short Message to Everyone …
Hello! I apologize for the lack of posts lately. One would think I had more time to think and to write and I suppose I have had more than enough time to think .... but the ideas that have been coming to me are fairly "grandiose" and do not make for "good" short blogging material. … Continue reading A Short Message to Everyone …
May I Be “So” Bold …
... as to state that so-called "first world" or "developed" countries should be living ... well, not EXACTLY like this (stockpiling canned fruit and toilet paper does not make for much in the way of ... anything, at least with any bit of luck ...) ... but if we were to somehow "merge" the "European" … Continue reading May I Be “So” Bold …
Living with Chronic Illness - Thoughts on Life and Life Advice from a Spoonie's Perspective 