Hello! I hope you are all having a good day and feeling as well as you can feel right now! I am just writing a short post (NOT because of psycho psychologist ... at least she will remain unnamed!!) to let you all know that I have a few really exciting things happening and coming … Continue reading Exciting things ahead!
Author: Beth Poste
I have been living with chronic illness since I was 2 months old. My first "formal" chronic illness diagnosis was Behçet's Disease - I was 17 at the time. I was later diagnosed with Common Variable Immune Deficiency (I more or less led the doctors to that diagnosis - that story is for another time!) and those have been my "primary" two illnesses. I have many other "secondary" diagnoses such as seronegative Rheumatoid Arthritis, Chiari 1 Malformation (a result, I believe, of the Behçet's causing aseptic meningitis time and again since it had never appeared in brain scans before I was about 24-25), osteoporosis, compression fractures of the thoracic spine, and many others. I know what it is like to feel as if you have lost years of your life that you can never recover from illness and the many restrictions it places upon you in your everyday life. I just want you to know that I know what it is like and I have been there through every period of my life - you are NOT ALONE! Please do not hesitate to contact me if you ever need someone to talk with or someone just to listen to you - I am always here! Thank you for taking the time to read this and my other posts and I hope you are having a happy and healthy day no matter where you are in the world! Take care.
Summer goals
This has been an incredibly difficult summer for me (and an incredibly difficult two years; a post I was advised NOT to write in one block by my former therapist, so I will be resuming writing it in ONE BLOCK as soon as I can!); my time has been spent largely trying to find my … Continue reading Summer goals
The Scorpion and the monk
So I have run into a lot of backstabbing behavior from people I genuinely considered friends (some for short periods of time, some for decades - most of the longer friendships have been busted by obviously jealous "girlfriends" who really have no idea who they are up against when they are up against me ... … Continue reading The Scorpion and the monk
How do you make impossible decisions?
So, for those who do not follow me on social media, my cat - the boy whose life I saved and the boy who has saved mine more times than I could ever attempt to count; the one who has been the one in the "it's just you and me, babe!" for 12 years - … Continue reading How do you make impossible decisions?
Juneteenth
"FreedomThe very time I thought I was lost, my dungeon shook and my chains fell off.Free at last, free at last. Thank God almighty." what beautiful words. Many of you might not know that I have fought for the status of #juneteenth as a Federal holiday for about a decade now. What upset me the … Continue reading Juneteenth
a question regarding writing
I have a question for my fellow writers; to phrase it as succinctly as I can, how do you keep writing when your world is falling apart around you? I would love to hear your comments, so please leave them below, but this is a particularly challenging situation for me because, as I have said … Continue reading a question regarding writing
A Thought about the “meaning of friendship”
I know I have been talking a lot about "friendship" in the last few posts ... as well as in several posts that I wrote quite some time ago. I can appreciate that there are many people (well, maybe not, but that has nothing to do with this!) but that the many people have different … Continue reading A Thought about the “meaning of friendship”
thankful tuesday
This is something I often forget myself. It became apparent when I started sending messages to my Facebook "friends" going down by alphabetical order (I am only at "G" with a few exceptions). Sometimes you forget that some of the best friends you have ever had are actually still there for you. And ... aside … Continue reading thankful tuesday
Fairweather friends
I honestly don't know how even to start to approach this one. I know I have hinted at it in many of my recent previous posts, but I'm having a REALLY hard time. Like ... sobbing for hours a day not because my cat has cancer but because people I not only thought were my … Continue reading Fairweather friends
JuJu BEE!
So I know I have missed quite a long period of my life in blog posts; with any luck, just by the way I talk, I will eventually cover all the "missed" things. One of these things was adopting a baby brother for Sparky Puck, given his very severe illness and now cancer diagnosis. This … Continue reading JuJu BEE!
Living with Chronic Illness - Thoughts on Life and Life Advice from a Spoonie's Perspective 