I mention "memory problems" / "memory loss" because I had an amazing post I meant to write today ... but I was driving home from the dentist (my second home) and I didn't have any way of getting it down - even "touching" a cell phone while driving in Bethlehem is illegal! - and now … Continue reading EEEEEEEE … Memory Loss and Possible Seizures….
Author: Beth Poste
I have been living with chronic illness since I was 2 months old. My first "formal" chronic illness diagnosis was Behçet's Disease - I was 17 at the time. I was later diagnosed with Common Variable Immune Deficiency (I more or less led the doctors to that diagnosis - that story is for another time!) and those have been my "primary" two illnesses. I have many other "secondary" diagnoses such as seronegative Rheumatoid Arthritis, Chiari 1 Malformation (a result, I believe, of the Behçet's causing aseptic meningitis time and again since it had never appeared in brain scans before I was about 24-25), osteoporosis, compression fractures of the thoracic spine, and many others. I know what it is like to feel as if you have lost years of your life that you can never recover from illness and the many restrictions it places upon you in your everyday life. I just want you to know that I know what it is like and I have been there through every period of my life - you are NOT ALONE! Please do not hesitate to contact me if you ever need someone to talk with or someone just to listen to you - I am always here! Thank you for taking the time to read this and my other posts and I hope you are having a happy and healthy day no matter where you are in the world! Take care.
The Discrepancy Between Body and Mind
One of the most difficult obstacles I personally face with chronic illness is dealing with both a "sick" body and a very "healthy" mind. This could be turned the other way with mental illness (also chronic illness!) in which one's mind is at odds with one's body. It's a constant state of turbulence in which … Continue reading The Discrepancy Between Body and Mind
Depression and Chronic Illness
After years of living with chronic illness, depression is inevitable. I don't really feel like talking (or writing, as the case is here), but I seem to have fallen into a pit of the aforementioned depression over the last day or so. I feel like my life sucks and that I have struggled so hard … Continue reading Depression and Chronic Illness
What It’s Like to WAKE UP w/Chronic Illness
Have you ever had the flu? The feeling of a high fever, the aches and pains, the throbbing head (and eyes), the crazy body aches, the feeling of being unable to get warm, the absolute exhaustion? So many times I have to "justify" feeling like absolute CRAP when I wake up in the morning - … Continue reading What It’s Like to WAKE UP w/Chronic Illness
I wish I would have been tracking this whole time. — Artslinger19
This is a really good app for anyone who deals with chronic pain. I woke up this morning and started thinking back to all the stuff I’ve bought over the years thinking I was just sleeping wrong , going to bed with a heating pad on high (so glad I didn’t burn myself up on […] … Continue reading I wish I would have been tracking this whole time. — Artslinger19
Thinking about “Neighbors” and Others …
So I have reached a profound albeit seemingly obvious conclusion. Which makes for a short post. *YAY!* The world is inherently unfair. I have struggled just to be alive since I was 2 months old. I faced over a decade of tragedy and loss that no one on the planet "deserves." I would not wish … Continue reading Thinking about “Neighbors” and Others …
Pee-Ess …
PLEASE DISREGARD THE ADVICE OF ANY "MEDICAL PROFESSIONAL" WHO STORES HIS OR HER SHOES AND THE SHOES OF HIS OR HER FAMILY ON ROCKS OR PEBBLES IN A SHOE TRAY! THAT SEEMS OBVIOUS ENOUGH! I just had to throw that one out there as well! Thanks! ❤ Always, Beth
