Living with Chronic Illness – Thoughts on Life and Life Advice from a Spoonie's Perspective
What the World Looks Like from the "Outside" Looking IN – YOU ARE NOT ALONE!
The topic of "Chronic Illness and Fear" could go on indefinitely; it not only affects us when we are faced with definitive physical issues but it slithers its way into every crevice of our lives. Just the fact that our health care providers essentially hold our lives (and aspects of them like the functioning of … Continue reading Chronic Illness and Fear: Pt. 1
I object to the objections "allowed" in marriage; those words, "speak now, or forever hold your peace" seem like a non-essential decoration more than anything "meaningful." How realistic or likely is it that those who would need to object or want to object would just happen to be in the same place at the same … Continue reading Time …
Who ever would have thought I would be quoting "Gossip Girl?!" But here I am and here it is - something to think about in many contexts - "It's not the secrets that cause the problems; it's the assumptions that people make about them." This doesn't apply just to "secrets;" it applies to relationships we … Continue reading The Wisdom of … “Gossip Girl?!?!?”
Behcet's is at once an "illness" that is easy to describe and yet incredibly difficult to explain. It is very much like an autoimmune disease but it is NOT a "true" autoimmune disease: it is a type of auto-inflammatory vasculitis. I have recently run into a barrage of "fire," as it were, for questioning someone … Continue reading Friday Facts – What is Behcet’s? (Part One)
Today I made my now "annual" trip to Manhattan to see "Dr. Y." I learned so much and found out so much new information that it warrants at least its own post. I am worn down from the trip - I cannot make the drive on my own and if you don't know the city … Continue reading Thursday … Thursday …
Money is a difficult subject for just about everyone. Talking about "financial success" and spending or even just having money, however, can be a topic that brings absolute panic to someone with chronic illness - it certainly does for me. Aside from chronic illness itself - that is, thinking about how I feel in the … Continue reading Wednesday Wisdom – Spending Money
"All's well that ends well."There are many instances in life in which we give up so much in order for a shot at a better "ending." Getting into hundreds of thousands of dollars in debt so one can practice medicine; giving up love and friendship in order to move to the place one has always … Continue reading Tautology Tuesday – Shakespeare Edition
