A quick post with a quick question for my fellow “spoonies” / those of you with chronic illness that affects your ability to function “normally” (i.e., work, go to school, &c.) – HOW DO YOU DEAL WITH INCONSIDERATE “HEALTHY” PEOPLE? People like neighbors who don’t care if they’re bothering you and others like this (I have dealt with this in school as well, but it’s the worst to deal with when it’s at the place where you are supposed to be able to REST and get “better”)? If you do not mind leaving a comment – or sending me one privately – I would really like to know! I will be the first to admit I often lack “tact” when it comes to dealing with others – especially healthy people who do nothing (that is, do not work BY CHOICE, do not go out and volunteer BY CHOICE, &c.) and healthy people who don’t care if they are bothering others and who those others might be (and what problems they might have). So yes … some “help” in this arena would be greatly appreciated! Thanks much!
❤ Always, Beth
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Published by Beth Poste
I have been living with chronic illness since I was 2 months old. My first "formal" chronic illness diagnosis was Behçet's Disease - I was 17 at the time. I was later diagnosed with Common Variable Immune Deficiency (I more or less led the doctors to that diagnosis - that story is for another time!) and those have been my "primary" two illnesses. I have many other "secondary" diagnoses such as seronegative Rheumatoid Arthritis, Chiari 1 Malformation (a result, I believe, of the Behçet's causing aseptic meningitis time and again since it had never appeared in brain scans before I was about 24-25), osteoporosis, compression fractures of the thoracic spine, and many others. I know what it is like to feel as if you have lost years of your life that you can never recover from illness and the many restrictions it places upon you in your everyday life. I just want you to know that I know what it is like and I have been there through every period of my life - you are NOT ALONE! Please do not hesitate to contact me if you ever need someone to talk with or someone just to listen to you - I am always here! Thank you for taking the time to read this and my other posts and I hope you are having a happy and healthy day no matter where you are in the world! Take care.
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Living with Chronic Illness - Thoughts on Life and Life Advice from a Spoonie's Perspective 