This is a tough time of the year for spoonies like me. If you are one of the VERY fortunate “healthy” people of the world, please try to extend some extra kindness, compassion, and love to those around you who do not have the blessing of good health. At the same time, those of us who face chronic illness should extend what we have with others who do not have the things with which we are blessed….
At any rate, it is a tough time of the year for me. I just wanted to stop in and write … SOMETHING. If I’m a little bit more than a little MIA … now you know why….
❤ Always, Beth
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Published by Beth Poste
I have been living with chronic illness since I was 2 months old. My first "formal" chronic illness diagnosis was Behçet's Disease - I was 17 at the time. I was later diagnosed with Common Variable Immune Deficiency (I more or less led the doctors to that diagnosis - that story is for another time!) and those have been my "primary" two illnesses. I have many other "secondary" diagnoses such as seronegative Rheumatoid Arthritis, Chiari 1 Malformation (a result, I believe, of the Behçet's causing aseptic meningitis time and again since it had never appeared in brain scans before I was about 24-25), osteoporosis, compression fractures of the thoracic spine, and many others. I know what it is like to feel as if you have lost years of your life that you can never recover from illness and the many restrictions it places upon you in your everyday life. I just want you to know that I know what it is like and I have been there through every period of my life - you are NOT ALONE! Please do not hesitate to contact me if you ever need someone to talk with or someone just to listen to you - I am always here! Thank you for taking the time to read this and my other posts and I hope you are having a happy and healthy day no matter where you are in the world! Take care.
View all posts by Beth Poste
Living with Chronic Illness - Thoughts on Life and Life Advice from a Spoonie's Perspective 