At least as far as I know – I could be very wrong – “blogging” requires writing of some kind. And writing that involves more than the creation of a list of self-absorbed superlatives that collectively imply you think you’re hot sh!t.
I have been sad. And I am very sad.
I will elaborate on point 2 as soon as I am able. I am very seriously thinking about returning to YouTube (please go check my channel out – I am “THE SPOONIE SENSEI” here and everywhere else!) because I am the point at which my health has improved PERHAPS enough for me to get a video out every now and then … and articulating what I am feeling and what I know others are feeling (the unspoken-for) would be much easier if I could convey such a combination of sentiments both in words and in images.
At any rate, I hope this “holiday season” is being a little easier on my fellow “I got sick at the ‘prime of my life'” spoonies. I know I have already said it, but this is a particularly difficult time of the year….
I have been living with chronic illness since I was 2 months old. My first "formal" chronic illness diagnosis was Behçet's Disease - I was 17 at the time. I was later diagnosed with Common Variable Immune Deficiency (I more or less led the doctors to that diagnosis - that story is for another time!) and those have been my "primary" two illnesses. I have many other "secondary" diagnoses such as seronegative Rheumatoid Arthritis, Chiari 1 Malformation (a result, I believe, of the Behçet's causing aseptic meningitis time and again since it had never appeared in brain scans before I was about 24-25), osteoporosis, compression fractures of the thoracic spine, and many others. I know what it is like to feel as if you have lost years of your life that you can never recover from illness and the many restrictions it places upon you in your everyday life. I just want you to know that I know what it is like and I have been there through every period of my life - you are NOT ALONE! Please do not hesitate to contact me if you ever need someone to talk with or someone just to listen to you - I am always here! Thank you for taking the time to read this and my other posts and I hope you are having a happy and healthy day no matter where you are in the world! Take care.
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