Today I made my now “annual” trip to Manhattan to see “Dr. Y.” I learned so much and found out so much new information that it warrants at least its own post. I am worn down from the trip – I cannot make the drive on my own and if you don’t know the city extremely well, I don’t know HOW you could make the drive on your own, but I am still exhausted from the extraordinarily stressful drive and having to be the very alert navigator. I just wanted to pop in here quickly and say I have so much “new information” to share and I will be doing just that in the days to come! Fellow Behcet’s “patients,” (and all others, of course!) stay tuned!
❤ Always, Beth
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Published by Beth Poste
I have been living with chronic illness since I was 2 months old. My first "formal" chronic illness diagnosis was Behçet's Disease - I was 17 at the time. I was later diagnosed with Common Variable Immune Deficiency (I more or less led the doctors to that diagnosis - that story is for another time!) and those have been my "primary" two illnesses. I have many other "secondary" diagnoses such as seronegative Rheumatoid Arthritis, Chiari 1 Malformation (a result, I believe, of the Behçet's causing aseptic meningitis time and again since it had never appeared in brain scans before I was about 24-25), osteoporosis, compression fractures of the thoracic spine, and many others. I know what it is like to feel as if you have lost years of your life that you can never recover from illness and the many restrictions it places upon you in your everyday life. I just want you to know that I know what it is like and I have been there through every period of my life - you are NOT ALONE! Please do not hesitate to contact me if you ever need someone to talk with or someone just to listen to you - I am always here! Thank you for taking the time to read this and my other posts and I hope you are having a happy and healthy day no matter where you are in the world! Take care.
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Living with Chronic Illness - Thoughts on Life and Life Advice from a Spoonie's Perspective 