One note to end the night on – I just want to be perfectly clear that I WHOLEHEARTEDLY MEAN IT WHEN I SAY that if you need help or need someone to talk to or just someone who will listen, and not judge, I AM HERE. I cannot tell you how important it is for me to convey that as succinctly and directly as possible. Whether you are someone I have never met or a good friend or an acquaintance or someone I just “happen” to know or anything in between any of those “groups,” I just want you to know I AM HERE. Whatever you’re going through, you are NOT alone.
If you go to bed thinking how bad things are … if you go to bed wishing you were somewhere else … if you go to bed wishing you were next to someone else … don’t suffer in silence. PLEASE. I know how isolating chronic illness can be and I cannot know (necessarily) how isolating “regular” life can be, especially in cases in which the picture looks perfect from the outside but is nothing but rotten on the inside … but I can try to understand. And I can empathize. And believe it or not, I really am a very good “listener.” Just know that I am here.
Have a good one, everyone. My heart is ALWAYS with YOU.
❤ Always, Beth
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Published by Beth Poste
I have been living with chronic illness since I was 2 months old. My first "formal" chronic illness diagnosis was Behçet's Disease - I was 17 at the time. I was later diagnosed with Common Variable Immune Deficiency (I more or less led the doctors to that diagnosis - that story is for another time!) and those have been my "primary" two illnesses. I have many other "secondary" diagnoses such as seronegative Rheumatoid Arthritis, Chiari 1 Malformation (a result, I believe, of the Behçet's causing aseptic meningitis time and again since it had never appeared in brain scans before I was about 24-25), osteoporosis, compression fractures of the thoracic spine, and many others. I know what it is like to feel as if you have lost years of your life that you can never recover from illness and the many restrictions it places upon you in your everyday life. I just want you to know that I know what it is like and I have been there through every period of my life - you are NOT ALONE! Please do not hesitate to contact me if you ever need someone to talk with or someone just to listen to you - I am always here! Thank you for taking the time to read this and my other posts and I hope you are having a happy and healthy day no matter where you are in the world! Take care.
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