Well, at last here I am!
I started this “blog” as a way to express two very important sentiments related to my chronic illnesses: 1. that there are many ways of doing things and no one operates on the same “timeline” despite social pressures to do just that (see many posts to come!) and 2. that YOU, that NONE OF US, is EVER ALONE! I know how isolating chronic illness can be; I have lost more or less all of my friends, I haven’t had or been able to “date” in about a decade, and my life has basically “fallen apart at the seams.” With that being said, I know that although physically I might be alone in there here and now, that there are so many people out there who are going through the exact same thing that I am, or who have been through it and seen it through to the other side. There is ALWAYS hope. I want you to know that. I hope to convey an “alternative perspective” to the “traditional” views of what should happen and when and why in life and to show you that chronic illness, as awful as it might be, does, in fact, come with its own set of blessings.
I hope you are interested – if anyone ever has a topic he or she would like to discuss or just needs a shoulder to lean on (or an ear to listen!), feel free to contact me! I am here! I hope you are having a happy and healthy day, no matter where you are in the world!
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Published by Beth Poste
I have been living with chronic illness since I was 2 months old. My first "formal" chronic illness diagnosis was Behçet's Disease - I was 17 at the time. I was later diagnosed with Common Variable Immune Deficiency (I more or less led the doctors to that diagnosis - that story is for another time!) and those have been my "primary" two illnesses. I have many other "secondary" diagnoses such as seronegative Rheumatoid Arthritis, Chiari 1 Malformation (a result, I believe, of the Behçet's causing aseptic meningitis time and again since it had never appeared in brain scans before I was about 24-25), osteoporosis, compression fractures of the thoracic spine, and many others. I know what it is like to feel as if you have lost years of your life that you can never recover from illness and the many restrictions it places upon you in your everyday life. I just want you to know that I know what it is like and I have been there through every period of my life - you are NOT ALONE! Please do not hesitate to contact me if you ever need someone to talk with or someone just to listen to you - I am always here! Thank you for taking the time to read this and my other posts and I hope you are having a happy and healthy day no matter where you are in the world! Take care.
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